Katie was about the same over the weekend. While I was there she was trying to talk and at times she would say a word here or there. My mom also said that she had said a few words throughout the week. However, Katie did get very frustrated when she was trying to talk because she couldn't get the words she wanted out. She also did this thing where she was moving her lips and looked like she was talking but no words ever came out. She is still very alert though and will follow us around the room, as well as look at us when we talk to her. A couple of things she did over the weekend that we found to be funny were she rolled her eyes at me when I was talking to her and asked her to quit sucking on her lip. She also had this grin on her face that looked like she knew something that we did not know. So Katie is coming back to herself and we are able to see bits and pieces of that here and there, it is just a slow process. The doctors told us that with Katie's condition the last thing that she lost the ability to do will be the first thing that she will be able to do now that we have done the Pheresis treatments. So it's like we are reversing the condition. Then in about another ten days they are going to give her another dose of medicine that will slow down or kill the cells that are producing the bad anti-bodies. She has already had one dose of this and they are not able to give another dose until two weeks after the first dose.
I also wanted to mention that in the video that I posted earlier in the week the lady had to do chemo and had a tumor. Right now Katie does not have a tumor and they have checked several times for one. With this condition some people will have a tumor and that is what causes the Anti-NMDA receptor encephalitis in them and other people will not have a tumor at all. Also, Katie does not have cancer even though some people with this disease can have cancer, she does not. So we just did not want anyone to worry about Katie having certain things when she did not. However, several of the other symptoms the lady had are similar or the same as Katie's.
Thank you everyone for all that you have done and for all of the prayers! It means a lot to all of us!
"I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world." - John 16:33
Peace I leave with you; my peace I give you. I do not give you as the world gives. Do not let your hearts be troubled and do not be afraid. - John 14:27
So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. - Isaiah 41:10
