Katie was about the same over the weekend. While I was there she was trying to talk and at times she would say a word here or there. My mom also said that she had said a few words throughout the week. However, Katie did get very frustrated when she was trying to talk because she couldn't get the words she wanted out. She also did this thing where she was moving her lips and looked like she was talking but no words ever came out. She is still very alert though and will follow us around the room, as well as look at us when we talk to her. A couple of things she did over the weekend that we found to be funny were she rolled her eyes at me when I was talking to her and asked her to quit sucking on her lip. She also had this grin on her face that looked like she knew something that we did not know. So Katie is coming back to herself and we are able to see bits and pieces of that here and there, it is just a slow process. The doctors told us that with Katie's condition the last thing that she lost the ability to do will be the first thing that she will be able to do now that we have done the Pheresis treatments. So it's like we are reversing the condition. Then in about another ten days they are going to give her another dose of medicine that will slow down or kill the cells that are producing the bad anti-bodies. She has already had one dose of this and they are not able to give another dose until two weeks after the first dose.
I also wanted to mention that in the video that I posted earlier in the week the lady had to do chemo and had a tumor. Right now Katie does not have a tumor and they have checked several times for one. With this condition some people will have a tumor and that is what causes the Anti-NMDA receptor encephalitis in them and other people will not have a tumor at all. Also, Katie does not have cancer even though some people with this disease can have cancer, she does not. So we just did not want anyone to worry about Katie having certain things when she did not. However, several of the other symptoms the lady had are similar or the same as Katie's.
Thank you everyone for all that you have done and for all of the prayers! It means a lot to all of us!
"I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world." - John 16:33
Peace I leave with you; my peace I give you. I do not give you as the world gives. Do not let your hearts be troubled and do not be afraid. - John 14:27
So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. - Isaiah 41:10
Sunday, December 2, 2012
Friday, November 30, 2012
A little something...
This week Katie was able to move back up to the 11th floor, which is where she was to begin with. The reason they brought her down to the 10th floor which was the Progressive Care Unit was because they wanted to keep a closer eye on her because of her temperature and blood pressure. Therefore, it is a positive thing that Katie was brought back up to the 11th floor. They also did another round of Pheresis this week along with giving her a steroid after the Pheresis. They gave the steroid the last three times as well. Right now the doctors are just saying that it is going to take time for Katie to get well again and that it is not something that will happen over night.
The staff at Barnes has also been working on getting her a mouth piece that is fitted to her mouth. She has went through two other ones already and tore those up. The reason they want/ we want her to have a mouthpiece is because she is sucking on her lip and making it swell, biting her tongue and grinding her teeth. All of these are symptoms of her condition so it is normal for her to do stuff like this and she does not have any control over it. However, we do not want her to tear up her mouth or damage it so that is why she needs the mouthpiece. The two that she had before were not very comfortable and it rubbed against her lips. So one of the nurses who used to work in an orthodontist had a wonderful idea of the type of mouthpiece Katie needed and so now the staff their is working towards getting Katie that type of mouthpiece, which is a wonderful blessing.
Another thing that Katie has been doing this past week that she was not before is she is sitting up. When I talked to my mom she said that Katie would sit up for a little while and then lay back down, then sit up again and lay back. This is another positive sign.
Also, since Katie has been moved to a different floor and is in a different room so her room number has change. When sending Katie mail please put the room number 11469 instead of the other room number that I had on here before. If you have already sent her mail at that room number it will be fine and they will get it to the correct place.
Here is a YouTube video that I found about a lady who had Anti-NMDA receptor encephalitis and it explains and shows some of the things that Katie is and has went through. Now the lady in the video had a tumor on her ovary which is usually found in the women who have this condition; however, Katie does not have a tumor and that can also happen. I would also like to remind you that not all of the symptoms that this lady had are the same as Katie's. Katie does have some of these symptoms but not all of them. In this video there is a second part to it and I never watched it so I am not sure what it contains, but it was about a gentleman with a mystery diagnosis. In addition, if you have young children you may want to watch it before you let them watch it. There is nothing bad in it but it can be kind of scary to a young child. There are some websites I am also going to link on here if you would like to check them out. They will have some information about the condition.
http://www.youtube.com/watch?v=x-GBg7O_M0k
http://www.susannahcahalan.com/the-book/description/
http://www.scientificamerican.com/article.cfm?id=brain-on-fire-my-month-of
Thank you again for all of your prayers and everything all of you are doing! My mom and I truly appreciate it and we could not get through this without that. We just have to keep trusting in the Lord and know in our hearts that He is in control of everything!
No matter how your heart is grieving, if you keep on believing the dream that you wish will come true.- Cinderella
The staff at Barnes has also been working on getting her a mouth piece that is fitted to her mouth. She has went through two other ones already and tore those up. The reason they want/ we want her to have a mouthpiece is because she is sucking on her lip and making it swell, biting her tongue and grinding her teeth. All of these are symptoms of her condition so it is normal for her to do stuff like this and she does not have any control over it. However, we do not want her to tear up her mouth or damage it so that is why she needs the mouthpiece. The two that she had before were not very comfortable and it rubbed against her lips. So one of the nurses who used to work in an orthodontist had a wonderful idea of the type of mouthpiece Katie needed and so now the staff their is working towards getting Katie that type of mouthpiece, which is a wonderful blessing.
Another thing that Katie has been doing this past week that she was not before is she is sitting up. When I talked to my mom she said that Katie would sit up for a little while and then lay back down, then sit up again and lay back. This is another positive sign.
Also, since Katie has been moved to a different floor and is in a different room so her room number has change. When sending Katie mail please put the room number 11469 instead of the other room number that I had on here before. If you have already sent her mail at that room number it will be fine and they will get it to the correct place.
Here is a YouTube video that I found about a lady who had Anti-NMDA receptor encephalitis and it explains and shows some of the things that Katie is and has went through. Now the lady in the video had a tumor on her ovary which is usually found in the women who have this condition; however, Katie does not have a tumor and that can also happen. I would also like to remind you that not all of the symptoms that this lady had are the same as Katie's. Katie does have some of these symptoms but not all of them. In this video there is a second part to it and I never watched it so I am not sure what it contains, but it was about a gentleman with a mystery diagnosis. In addition, if you have young children you may want to watch it before you let them watch it. There is nothing bad in it but it can be kind of scary to a young child. There are some websites I am also going to link on here if you would like to check them out. They will have some information about the condition.
http://www.youtube.com/watch?v=x-GBg7O_M0k
http://www.susannahcahalan.com/the-book/description/
http://www.scientificamerican.com/article.cfm?id=brain-on-fire-my-month-of
Thank you again for all of your prayers and everything all of you are doing! My mom and I truly appreciate it and we could not get through this without that. We just have to keep trusting in the Lord and know in our hearts that He is in control of everything!
No matter how your heart is grieving, if you keep on believing the dream that you wish will come true.- Cinderella
Tuesday, November 27, 2012
Some background information
I know many of you are probably wondering what happened before Katie was brought up to Barnes and diagnosed with Anti-NMDA receptor encephalitis. So I wanted to give you some background info about how Katie acted and her symptoms so that it may make more sense.
My mom and I had seen Katie the weekend of the 13th of October at Silver Dollar City. She was there with a group from school and we had season passes so we decided to all meet up and hang out for the day. She seemed completely fine that day and acted just like normal. We talked about school, family, friends, rode rides and all that stuff. The only thing odd about Katie was that she was a little pale and I did not even notice that but our mom did. We just thought it was because she had been really busy with school, softball and getting used to college and she did not mention anything about not feeling well. So we went about the rest of our week like normal and things seemed to be fine. Katie and my mom had talked on the phone several times and everything seemed normal. The only thing that was wrong was Katie had told our mom that she had a dream about Jesse, our brother, but mom and her had talked about it and everything seemed to be okay. Then, the week of October 22nd she began doing odd things here and there. Sometimes Katie would say stuff that did not make sense and she became very outgoing at times. For example Katie was dancing in front of several people and we have a ridiculously hard time getting her to play Just Dance on the Wii. She also became very emotional at times and cried often which is not like Katie. By the end of the week she became more lifeless, incoherent and saying very odd things. We took her to the hospital in Jonesboro when we arrived in Arkansas and picked her up from the school. While she was in the ER the doctors ran tons of test on her and they checked her for everything you could imagine but she seemed to be just fine. Once the doctors found out about our family loss about two years ago and all of Katie's test being negative they concluded that this was a mental or psychosis problem and that is why she was brought to the Behavioral Center in Joneboro.
While Katie was at the Behavioral Center they were not able to give her a diagnosis. Katie became worse throughout the two weeks and they even brought her back to the medical hospital to do more test and still everything showed up negative. Now this is usually what happens to people who have Anti-NMDA receptor encephalitis they get mis-diagnosed at first because they do have all the symptoms for a psychosis disorder. Also, Katie fit the criteria because of the big loss in our family and being a freshman in college because that can cause a lot of stress. That is why it made such perfect sense, however Katie was still not getting better and this worried many people because if it was a mental issue she would have came out of it by then. Towards the end of the second week of Katie being there she started running a fever and that is when she had to be brought back to the medical hospital. They found out that she had strep and they were also checking for meningitis, but those results came back negative. So at that point we did not know what to do because we could not figure out what was wrong with her and things were getting worse. That is when my mom asked the doctors if we could have her transferred up to Barnes. The doctors contacted the doctors up there and by the grace of God Katie was accepted and we were able to get her up there. That is exactly what we needed and as I said before the doctors in Jonesboro did everything they could but Katie needed to be in a hospital that is use to having weird and abnormal cases like hers.
I hope this helps you understand Katie's situation a little better and all of the abnormal stuff that Katie did the two weeks before being admitted to Barnes were all symptoms of her condition and that is how people can act who are affected by this. Also, we were reminded that God knows best and that we need to trust in his timing. While Katie was in Jonesboro we tried to move her to a hospital closer to home but they either would not accept her or did not have a bed. This was very frustrating for us, but now we have her at Barnes which is closer to our home than Jonesboro was and plus we have family that lives close to the Barnes hospital and that is a very comforting thing. God's timing was perfect and he allowed Katie to be in a hospital where we could have close access to family and friends which is a great support and comfort. Now, Katie had other signs and symptoms of the Anti-NMDA receptor encephalitis that I did not mention but I gave you the gist of everything. Thanks for everything you all are doing and for all the prayers it means so much to us!
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.- Romans 8:28
My mom and I had seen Katie the weekend of the 13th of October at Silver Dollar City. She was there with a group from school and we had season passes so we decided to all meet up and hang out for the day. She seemed completely fine that day and acted just like normal. We talked about school, family, friends, rode rides and all that stuff. The only thing odd about Katie was that she was a little pale and I did not even notice that but our mom did. We just thought it was because she had been really busy with school, softball and getting used to college and she did not mention anything about not feeling well. So we went about the rest of our week like normal and things seemed to be fine. Katie and my mom had talked on the phone several times and everything seemed normal. The only thing that was wrong was Katie had told our mom that she had a dream about Jesse, our brother, but mom and her had talked about it and everything seemed to be okay. Then, the week of October 22nd she began doing odd things here and there. Sometimes Katie would say stuff that did not make sense and she became very outgoing at times. For example Katie was dancing in front of several people and we have a ridiculously hard time getting her to play Just Dance on the Wii. She also became very emotional at times and cried often which is not like Katie. By the end of the week she became more lifeless, incoherent and saying very odd things. We took her to the hospital in Jonesboro when we arrived in Arkansas and picked her up from the school. While she was in the ER the doctors ran tons of test on her and they checked her for everything you could imagine but she seemed to be just fine. Once the doctors found out about our family loss about two years ago and all of Katie's test being negative they concluded that this was a mental or psychosis problem and that is why she was brought to the Behavioral Center in Joneboro.
While Katie was at the Behavioral Center they were not able to give her a diagnosis. Katie became worse throughout the two weeks and they even brought her back to the medical hospital to do more test and still everything showed up negative. Now this is usually what happens to people who have Anti-NMDA receptor encephalitis they get mis-diagnosed at first because they do have all the symptoms for a psychosis disorder. Also, Katie fit the criteria because of the big loss in our family and being a freshman in college because that can cause a lot of stress. That is why it made such perfect sense, however Katie was still not getting better and this worried many people because if it was a mental issue she would have came out of it by then. Towards the end of the second week of Katie being there she started running a fever and that is when she had to be brought back to the medical hospital. They found out that she had strep and they were also checking for meningitis, but those results came back negative. So at that point we did not know what to do because we could not figure out what was wrong with her and things were getting worse. That is when my mom asked the doctors if we could have her transferred up to Barnes. The doctors contacted the doctors up there and by the grace of God Katie was accepted and we were able to get her up there. That is exactly what we needed and as I said before the doctors in Jonesboro did everything they could but Katie needed to be in a hospital that is use to having weird and abnormal cases like hers.
I hope this helps you understand Katie's situation a little better and all of the abnormal stuff that Katie did the two weeks before being admitted to Barnes were all symptoms of her condition and that is how people can act who are affected by this. Also, we were reminded that God knows best and that we need to trust in his timing. While Katie was in Jonesboro we tried to move her to a hospital closer to home but they either would not accept her or did not have a bed. This was very frustrating for us, but now we have her at Barnes which is closer to our home than Jonesboro was and plus we have family that lives close to the Barnes hospital and that is a very comforting thing. God's timing was perfect and he allowed Katie to be in a hospital where we could have close access to family and friends which is a great support and comfort. Now, Katie had other signs and symptoms of the Anti-NMDA receptor encephalitis that I did not mention but I gave you the gist of everything. Thanks for everything you all are doing and for all the prayers it means so much to us!
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.- Romans 8:28
Sunday, November 25, 2012
A Thanksgiving Blessing
A few days ago the doctor came in and said that he had received the results back from the Mayo Clinic. The results came back positive and that means Katie has anti-NMDA receptor encephalitis. This is what the doctors thought Katie had and had started treating her for. So we were headed in the right direction and just needed that confirmation which we have now. So they doctors did another pheresis treatment today and will do one on Tuesday as well. Katie has been doing a little better since she has had the pheresis treatments. This past weekend she said the words, I know, yeah and we think she also said "go home". This is all a good thing because before Katie either did not talk at all or you could not understand anything she was saying. Katie is also a little more alert to what is going on around her and to the people that are around. However, she is very confused and does not understand what is really going on. Most people who have this diagnosis do not remember everything that happens and that is probably what is happening with Katie right now. So she does not understand why she is at the hospital or how she got there. Today though she wanted to sit up and she has not tried doing that yet, so that was another improvement.
I know this diagnosis has a big name and sounds confusing, which it is but there is a book out called Brain on Fire, my Month of Madness by Susannah Cahalan who also had this. I have ordered the book but have not got to read it yet. I think it will help anyone understand what is happening to Katie better. I know that the book is cheaper to buy online than the store and there is also a website that has the book on it to read for free. I will post that site within the next few days I'm not exactly sure what it is called yet.
Anti-NMDA receptor encephalitis is an uncommon disorder and the doctor said that only around 200 people in the U.S. have been diagnosed with it. Also, it has only been given a name about five years ago so it is still very new. In addition, it will take Katie a while to recover. The doctor said she would be at Barnes for a few more weeks or even months. Later on down the road she will have to do rehab in order to learn how to do certain everyday things again. Now this disorder is nothing to get worried about, people recover and will be back to themselves once everything is all done. It just takes time which is okay with us. I will find some good links that explain what Anti-NMDA receptor encephalitis is and post them within the next few days so that everyone can gather more information about what is happening to Katie. Also if you look this disorder up online it will bring up many different sites with information.
Thank you everyone for all of the thoughts, prayers and encouragement it means the world to us and it helps us get through everything so much more easier. And thank you for all the prayers and support you are showing my sister, she is a tough person and that has really shown through all of this. Have a wonderful week!
"Be joyful always, pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus."- 1 Thessalonians 5:16-18
I know this diagnosis has a big name and sounds confusing, which it is but there is a book out called Brain on Fire, my Month of Madness by Susannah Cahalan who also had this. I have ordered the book but have not got to read it yet. I think it will help anyone understand what is happening to Katie better. I know that the book is cheaper to buy online than the store and there is also a website that has the book on it to read for free. I will post that site within the next few days I'm not exactly sure what it is called yet.
Anti-NMDA receptor encephalitis is an uncommon disorder and the doctor said that only around 200 people in the U.S. have been diagnosed with it. Also, it has only been given a name about five years ago so it is still very new. In addition, it will take Katie a while to recover. The doctor said she would be at Barnes for a few more weeks or even months. Later on down the road she will have to do rehab in order to learn how to do certain everyday things again. Now this disorder is nothing to get worried about, people recover and will be back to themselves once everything is all done. It just takes time which is okay with us. I will find some good links that explain what Anti-NMDA receptor encephalitis is and post them within the next few days so that everyone can gather more information about what is happening to Katie. Also if you look this disorder up online it will bring up many different sites with information.
Thank you everyone for all of the thoughts, prayers and encouragement it means the world to us and it helps us get through everything so much more easier. And thank you for all the prayers and support you are showing my sister, she is a tough person and that has really shown through all of this. Have a wonderful week!
"Be joyful always, pray continually, give thanks in all circumstances, for this is God's will for you in Christ Jesus."- 1 Thessalonians 5:16-18
Saturday, November 24, 2012
Katie's Address
If anyone would like to send Katie something (a letter, card etc...) the address is:
Katie Highfill rm 10580
One Barnes Jewish Hospital Plaza
St. Louis, Mo 63110
Katie Highfill rm 10580
One Barnes Jewish Hospital Plaza
St. Louis, Mo 63110
Wednesday, November 21, 2012
The latest...
Katie has been about the same for the last few days. She has been running a fever and her heart rate has been kind of high lately; however, that is most likely a symptom of what she has. They still went ahead and moved her down a floor so that they can keep a better eye on her. She is in the PCU (progressive care unit) for neurology and neuroscience, which is for the patients who do not need to be in the ICU, but still need to be looked at and monitored more often. She has also been having episodes that look like seizures, but they are not which is a good thing. The doctors there have her protected though to where she cannot hurt herself while these episodes are happening and they have a camera on her 24/7, so Katie is always being watched.
Right now they are thinking that Katie has a disorder called Anti-NMDA receptor antibody and I know I didn't mention it earlier but I thought I would. They have not received the results back from the Mayo Clinic to confirm it yet, but still wanted to start on the treatment. So we are still not a 100% sure that this is what she has. The Anti-NMDA receptor antibody is mainly a disorder where the anti-bodies in her body are acting inappropriately and attacking her brain. This disorder is very new and has only been around and had a name for about five years. If you look up the disorder online it may be helpful to understand because it is confusing. As of now the treatment they are doing is called pheresis which is where they take out some of her blood at a time and spin it. When they spin the blood it separates the blood from the plasma and they get rid of the plasma because they believe that is where the bad anti-bodies are. This procedure will have to be done several times and it will take a while before we will see any difference in Katie.
On a different note, I hope that everyone has a great Thanksgiving!!! Also, do not forget to tell your family and friends how much you love and care for them because you never know when they may not be there anymore. Have a wonderful holiday and thank you again for all the support and prayers!
Everything happens for a reason!
Right now they are thinking that Katie has a disorder called Anti-NMDA receptor antibody and I know I didn't mention it earlier but I thought I would. They have not received the results back from the Mayo Clinic to confirm it yet, but still wanted to start on the treatment. So we are still not a 100% sure that this is what she has. The Anti-NMDA receptor antibody is mainly a disorder where the anti-bodies in her body are acting inappropriately and attacking her brain. This disorder is very new and has only been around and had a name for about five years. If you look up the disorder online it may be helpful to understand because it is confusing. As of now the treatment they are doing is called pheresis which is where they take out some of her blood at a time and spin it. When they spin the blood it separates the blood from the plasma and they get rid of the plasma because they believe that is where the bad anti-bodies are. This procedure will have to be done several times and it will take a while before we will see any difference in Katie.
On a different note, I hope that everyone has a great Thanksgiving!!! Also, do not forget to tell your family and friends how much you love and care for them because you never know when they may not be there anymore. Have a wonderful holiday and thank you again for all the support and prayers!
Everything happens for a reason!
Sunday, November 18, 2012
A Positive Note
Today I saw Katie and she is in about the same state as she has been for the past few days. She has been unresponsive and sometimes she will look around, but if we talk to her she does not say anything back to us. She also does not talk any other time either, but this is also one of the symptoms. They have also got a feeding tube in her and she has been able to keep the food down the past couple of days and that is a good thing.
The doctors think they know what Katie has, but we are still waiting on the results to come back before they confirm it. If it is what they think she has it is a physical sickness and not a mental sickness, like we first thought. Katie has a great majority of the symptoms and it would explain a lot of her actions throughout the past few weeks. Also, if the results do confirm that Katie has what the doctors think it is then they have a way to fix it. However, that process could take quite a while, but Barnes Hospital has done this procedure before. I would give everyone the name of what they suspect Katie to have but I am going to wait until it is confirmed, just so we don't jump the gun or anything.
We also wanted to thank everyone for all their support and prayers, it means so much to us! Thank you very much!
I learned there are troubles of more than one kind. Some come from ahead, others come from behind. But I've bought a big bat. I'm all ready, you see. Now my troubles are going to have trouble with me.- Dr. Seuss
The doctors think they know what Katie has, but we are still waiting on the results to come back before they confirm it. If it is what they think she has it is a physical sickness and not a mental sickness, like we first thought. Katie has a great majority of the symptoms and it would explain a lot of her actions throughout the past few weeks. Also, if the results do confirm that Katie has what the doctors think it is then they have a way to fix it. However, that process could take quite a while, but Barnes Hospital has done this procedure before. I would give everyone the name of what they suspect Katie to have but I am going to wait until it is confirmed, just so we don't jump the gun or anything.
We also wanted to thank everyone for all their support and prayers, it means so much to us! Thank you very much!
I learned there are troubles of more than one kind. Some come from ahead, others come from behind. But I've bought a big bat. I'm all ready, you see. Now my troubles are going to have trouble with me.- Dr. Seuss
Wednesday, November 14, 2012
What is going on???
Hello,
I know many of you are wondering about what is going on with Katie. I am her sister, Kara, and I wanted to create this blog, so that we could inform the community about what is going on, as well as, pray, encourage and support Katie throughout this situation.
One thing that I ask though is please do not put any mean, rude or negative comments on here. That is not what this blog is meant for and if there are any of those types of comments on here I will delete this blog and I would hate to have to do that. So if you cannot say anything nice, please do not say anything at all. Thanks!
Katie is at Barnes-Jewish Hospital and she was brought up there this past weekend. She is in very good hands there and she has several doctors trying to figure out what is wrong. They are all very nice and working as hard as they can to figure out what is going. Katie has also had several medical test done and all of those have came back negative, which is a good thing. Katie was at St. Bernards before she was moved to Barnes and they did everything that they could for her there. As one doctor pointed out and I agree with him, he said "St. Bernards medical hospital is meant to treat your everyday brown horse and Barnes-Jewish is meant to treat zebras and right now Katie is a zebra". Therefore, Katie is in the right place, and now it is just a matter of being patient, waiting and knowing that God has the situation under control. As of now all we can do is pray, support and encourage Katie.
I will update this blog every 2 to 3 days, if not sooner than that. I know that many of you will have questions after reading this and most of them we probably cannot answer, but if you would like to ask any questions you may send me a message through Facebook. I will try to answer it the best I can for you. Also, my family and I want to thank everyone for all the support, thoughts and prayers!!! They have definitely helped us get through this difficult time and they will continue to help us get through the rest of this.
James 1:2-3
Consider it a great joy, my brother and sisters, whenever you experience various trials, knowing that the testing of your faith produces endurance.
I know many of you are wondering about what is going on with Katie. I am her sister, Kara, and I wanted to create this blog, so that we could inform the community about what is going on, as well as, pray, encourage and support Katie throughout this situation.
One thing that I ask though is please do not put any mean, rude or negative comments on here. That is not what this blog is meant for and if there are any of those types of comments on here I will delete this blog and I would hate to have to do that. So if you cannot say anything nice, please do not say anything at all. Thanks!
Katie is at Barnes-Jewish Hospital and she was brought up there this past weekend. She is in very good hands there and she has several doctors trying to figure out what is wrong. They are all very nice and working as hard as they can to figure out what is going. Katie has also had several medical test done and all of those have came back negative, which is a good thing. Katie was at St. Bernards before she was moved to Barnes and they did everything that they could for her there. As one doctor pointed out and I agree with him, he said "St. Bernards medical hospital is meant to treat your everyday brown horse and Barnes-Jewish is meant to treat zebras and right now Katie is a zebra". Therefore, Katie is in the right place, and now it is just a matter of being patient, waiting and knowing that God has the situation under control. As of now all we can do is pray, support and encourage Katie.
I will update this blog every 2 to 3 days, if not sooner than that. I know that many of you will have questions after reading this and most of them we probably cannot answer, but if you would like to ask any questions you may send me a message through Facebook. I will try to answer it the best I can for you. Also, my family and I want to thank everyone for all the support, thoughts and prayers!!! They have definitely helped us get through this difficult time and they will continue to help us get through the rest of this.
James 1:2-3
Consider it a great joy, my brother and sisters, whenever you experience various trials, knowing that the testing of your faith produces endurance.
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